More Resources for Adopting Children with Down Syndrome

What is Down syndrome?
Down syndrome is one of the most common genetic conditions, affecting approximately one in every 800-1,000 children. It is caused by the presence of an extra copy of chromosome 21 and is also referred to as trisomy 21. The additional genetic material alters the course of development and results in certain kinds of birth defects, as well as developmental delays in motor skills, language and other areas of learning. Most of the birth defects can be corrected with surgery. There is a broad range of mental abilities, behavior and physical development in Down syndrome. Individuals with Down syndrome benefit greatly from early developmental intervention, special education and a specific plan of medical care.

Source: Down Syndrome Center, Department of Pediatrics, Washington University, St. Louis, MO.

Thanks to Monica, an adoptive mom to a child with Down syndrome, who recommended the following links:

Yahoo group for families looking to adopt or who have adopted children with Down syndrome. Issues discussed are the adoption process, health concerns, special services and personal stories, information on waiting children and children available for adoption. The group has 131 members.
To subscribe: down_syndrome_adoption-subscribe@yahoogroups.com

Trisomy 21 Online Community. This discussion forum is for all those who are touched by the adoption of a child with Trisomy 21. It is meant to be a place for birthparents, adoptive parents and potential adoptive parents to share information and support.  There is a Down syndrome adoption board at this site. It is not a very active board but they’d love to get some new activity.

Down Syndrome Research Foundation, Burnaby, BC, Canada. Empowers people with Down syndrome to achieve their potential, lead independent and fulfilled lives, and participate fully in the communities in which they live. Offers educational and training programs, disseminates information and research results, provides clinical support services, collaborates with other resource centres and community service providers, and raises funds to support a broad spectrum of research projects.

Check out my other blogs about adopting children with Down syndrome: April 8, 2005 and February 27, 2005.